Survivorship eNews
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Survivorship eNews June 2018
COSA Model of Survivorship Care
The COSA Survivorship Group undertook a project to develop a position statement for COSA and its members and stakeholder groups defining the critical components of cancer survivorship care. The guiding questions for the project were:
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- What are the critical components of survivorship care in Australia?
- What defines quality survivorship and how can it be survivor‐centred?
- How can we deliver a minimum standard of survivorship care in Australia?
A further objective was to develop an action plan to support staged implementation of Cancer Survivorship Care across a range of Australian healthcare settings. The issues around implementation of the Model in Australia will be examined as a part of the ongoing work of the COSA Survivorship Group.
The final Model of Survivorship Care was launched at the 2016 COSA ASM and is available by clicking on the links below:
- COSA Model of Survivorship Care – position statement and appendix (1.75 MB)
- COSA Model of Survivorship Care – appendix only (1.21 MB)
If you have any queries or comments, please contact us at cosa@cancer.org.au
Patient Reported Outcome (PRO) resources
COSA PRO Think Tank:
- August 2018 report (pdf, 458kb)
- PRO programs in practice: examples and lessions learned Afaf Girgis (member access)
- What are PROs? What is the evidence that individual-level data can inform routine clinical care? Madeleine King (member access)
FDA Public Workshop: 2018 Clinical Outcome Assessments in Cancer Clinical Trials - presentations include:
- SISAQOL – An International Initiative Andrew Bottomley (pdf 630kb)
- Proposed Core PRO Assessment Strategy Paul Kluetz (pdf 271kb)
- Why PROs? Rationale for collecting PROs in oncology drug development Ethan Basch (pdf 311kb)
- Fit for Purpose Instruments Selena Daniels (pdf 1.1MB)
- PRO Core Concepts in Cancer Trials – a Health Technology Assessment (HTA) point of view Beate Wieseler (pdf 196 kb)
Publications and Learning
Cancer Forum: Survivorship
Cancer Forum is Australia’s leading journal for multidisciplinary health professionals working in cancer.
Cancer Council press release ‘Australian cancer prevalence exceeds 1 million: new estimates’
Cancer Council ‘Living well after cancer’
US based ‘Wellness Guide for Cancer Survivors’
Cancer Learning ‘Survivorship’ online training offering up to date, evidence based practical tools, tips, resources and an introductory package of learning modules that aim to demonstrate how you can make a positive impact improving outcomes and care for people effected by cancer.
Australian Survivorship Services
Australian Cancer Survivorship Centre
The Australian Cancer Survivorship Centre is working to help improve health outcomes for cancer survivors.
National Centre for Cancer Survivorship
The National Centre for Cancer Survivorship links and coordinates existing services and through research, identifies needs and develops new interventions to provide the care and support for cancer survivors.
