Rare Cancers Group

More and more young Australians are using e-cigarettes. These are harmful to health and can cause nicotine
addiction, poisoning, seizures, burns and lung injury. The long-term harms are not yet known. Non-smokers who use e-cigarettes are much more likely to go on to smoke tobacco.

This is a rapidly accelerating public health crisis. Cancer Council and other public health groups call on governments to take immediate action—before it is too late.

The Australian Rare Cancer (ARC) Portal is an online referral service for clinicians to access expert clinical support, guidelines and research for patients diagnosed with a rare cancer.

Rare Cancers Australia (RCA) is a charity and support group for patients diagnosed with rare cancers. RCA focuses on: creating a patient community, advocacy, support programs, fundraising, treatment and research.

Cart-wheel is an online questionnaire that allows consumers to input their own rare cancer information for collective consumer driven research programs. An example of this is the WhiMSICAL study being undertaken in Waldenstrom’s Macroglobulinemia.

The RARECAREnet database examined the epidemiology of rare cancers in Europe representing 27 European countries. Their website provides a useful resource for understanding rare cancer types and their incidence.

The COSA Fertility Preservation Guidelines Working Group has developed these guidelines to assist health professionals discuss and manage fertility preservation for people with cancer in Australia.