Group Resources

Submissions

Communique for the permanent re-instatement of telehealth phone consultations

Endorsed Resources

Australian Rare Cancer Portal

The Australian Rare Cancer (ARC) Portal is an online referral service for clinicians to access expert clinical support, guidelines and research for patients diagnosed with a rare cancer.

Endorsed Resources

Rare Cancers Australia

Rare Cancers Australia (RCA) is a charity and support group for patients diagnosed with rare cancers. RCA focuses on: creating a patient community, advocacy, support programs, fundraising, treatment and research.

 

Endorsed Resources

Cart-wheel

Cart-wheel is an online questionnaire that allows consumers to input their own rare cancer information for collective consumer driven research programs. An example of this is the WhiMSICAL study being undertaken in Waldenstrom’s Macroglobulinemia.

Endorsed Resources

RARECAREnet database

The RARECAREnet database examined the epidemiology of rare cancers in Europe representing 27 European countries. Their website provides a useful resource for understanding rare cancer types and their incidence.

Guidelines

COSA guidelines for fertility preservation for people with cancer

The COSA Fertility Preservation Guidelines Working Group has developed these guidelines to assist health professionals discuss and manage fertility preservation for people with cancer in Australia.

Submissions

COSA general submission to the Australian Cancer Plan

The Australian Cancer Plan will be a 10-year plan for national action, with 2-, 5- and 10-year priorities and goals.

Group Chair

Group Chair Image
Group Chair

Clare Scott

Rare Cancers Group Chair & ANZGOG Representative