- GROUP Survivorship
- PROJECT SPAN 2023
- DATE 01/01/2023
Background
Following the success of a session on Financial Toxicity at the 2020 COSA ASM, we formed a Working Group to address financial toxicity in Australia. Working Group members represent a broad range of expertise from around Australia, including consumers.
Working Group Activities
Initial efforts have focused on understanding the problem – defining financial toxicity and scoping current activities and services. Work is now directed towards seeking solutions and developing innovations to address financial toxicity associated with cancer and its treatment.
Find out more about the Working Group's activities below.
Raymond Chan |
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Megan Varlow |
COSA convened a national Think Tank on Financial Toxicity in Cancer Care in May 2023, with the aim of identifying innovative solutions to address financial toxicity associated with cancer and its treatment. The Financial Toxicity Working Group is now developing a roadmap to draw out the key elements from the report that provide traction for further action. The roadmap will identify the leadership activities, policy changes and research activities required, and how to engage with health services and health systems to effect change. Solutions and future efforts will require a whole-of-sector approach and we will continue our engagement with key stakeholders to take this work forward.
COSA Financial Toxicity in Cancer Care Think Tank Report - 26 May 2023
Our Working Group conducted a national survey to understand how healthcare professionals perceive and approach financial toxicity. Two papers on this work have now been published:
COSA Council endorsed this definition of financial toxicity:
“The negative patient-level impact of the cost of cancer. It is the combined impact of direct out-of-pocket costs and indirect costs and the changing financial circumstances of an individual and their household due to cancer, its diagnosis, treatment, survivorship and palliation, causing both physical and psychological harms, affecting decisions which can lead to suboptimal cancer outcomes.”
- Challenges and solutions to cancer-related financial toxicity according to Australian health professionals: qualitative results from a national survey
- Suboptimal experiences with out-of-pocket costs, financial disclosure, and support information among people treated for cancer
- Opinions and strategies of Australian health professionals on tackling cancer-related financial toxicity: A nationwide survey
- Exploring the role of general practitioners in addressing financial toxicity in cancer patients
- Juggling cancer and life in Survivorship: the role of general practitioners
- Australian experiences of out-of-pocket costs and financial burden following a cancer diagnosis: a systematic review
- Cancer patients’ perspectives on financial burden in a universal healthcare system: Analysis of qualitative data from participants from 20 provincial cancer centers in Canada
- Screening for financial toxicity in clinical care with finance-related outcome measures
- Understanding the strategies rural cancer patients and survivors use to manage financial toxicity and the broader implications on their lives
The Working Group led a webinar in December 2021, in collaboration with CNSA, challenging the misconception that nothing can be done to address financial toxicity.
COSA has previously endorsed the Standard for Informed Financial Consent as a key component of delivering quality care (developed by Breast Cancer Network Australia, Cancer Council Australia, CanTeen and Prostate Cancer Foundation of Australia).
- For cancer information and support contact Cancer Council’s Information and Support Line on 13 11 20
- For financial, legal or workplace resources visit https://www.cancercouncil.com.au/cancer-information/legal-work-and-financial-issues/
Related projects
Survivorship
Patient Reported Outcomes (PRO) Working Group
Survivorship
Survivorship Group Collaborative Webinar Series
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